Ashley has been showing a bit of progress just lately. A year ago when this pic was taken he couldn't hold himself in a sitting position and spent most of his time staring at his hands.
Just recently after huge amounts of physio and a new course of Growth Hormone and Thyroxine the wee man is beginning to progress.
He has been commando crawling for a while but is now pushing his bum up a bit and even pushes up onto all fours (that got a cheer the first time he did it!) He's reaching up to get things off of tables too.
This evening he's showing us his Strongman Act. Big Sis (8) was googling for Dragon pictures and was sitting on a swivel chair (feet a-dangling) Ash managed to reach up and grab the back support and start swinging her left and right. Later he crawled to the double pram (Phil n Ted's 3 wheeler) and was shoving it back and forth laughing as he did it.
The docs at St Mary's in Manchester saw him today and said he'd grown a lot since starting the drugs in December. He's longer and heavier. We had expressed doubts about too much GH but they've assured us he won't become a new Andre the Giant!
Our real concerns lie with his sleeping. Just lately he's been sleepy an hour after getting up. They think he might not be producing Cortisol ( a hormone that reacts to stress) and did some more blood tests today. I think C helps him establish a daily slepp routine.
Anyhoo, they're all in bed and i'm off to Little Tesco for some shopping. Aah, the joy of Parenthood.
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